Guest sarah Posted March 23, 2013 Report Share Posted March 23, 2013 Hi Everyone, I'm new to CR and I have also been recently diagnosed with a rare disease called Birt Hogg Dube Syndrome. The most serious manifestation of this disease is kidney cancer. It is caused by a mutation in the FLCN gene that inhibits human growth hormone. The gene prevents cells manufacturing of a protein that inhibits tumor growth. I do not have any tumors now but I am 43 and the mean age of development of cancer for people with this disease is 48. I was just wondering if anyone knows of research concerning diseases like this and CR? Any thoughts any one has would be appreciated. Link to comment Share on other sites More sharing options...
Recommended Posts
Archived
This topic is now archived and is closed to further replies.